Aims:
The main aims and objectives of Niemann-Pick UK (NPUK) are, to make a positive difference to the lives of those affected by Niemann-Pick diseases, to relieve sickness and any distress that may arise there from, and to advance the education and awareness of families, professionals and the general public in all matters concerning the disease.
We aim to meet these objectives through:
- The provision of a support and advice service for families and individuals and associated health and social care professionals
- The collection, collation and dissemination of relevant information
- The provision of support for national clinical centres of expertise for Niemann-Pick diseases
- The promotion of relevant research
- The promotion of national and international collaboration
additional information:
NPUK provides support to those affected by all types of Niemann-Pick Disease including ASMD Niemann-Pick Disease Types A & B and Niemann-Pick Disease Type C.
Address
Suite 2 - Vermont House
Concord
Washington
Tyne & Wear
NE37 2SQ
United Kingdom
Website: http://www.npuk.org
Email: info@npuk.org
Helpline number: 0191 415 0693
