Aims: To provide support and information to families affected by retinoblastoma, at the point of diagnosis, during treatment and later in life as required To raise awareness of childhood eye cancer with health professionals and the public To promote and fund retinoblastoma related research. services provided: Provides support for anyone affected by retinoblastoma Runs events…
Fife
Ehlers-Danlos Support UK
Aims: To provide support, advice and information for people with EDS or HSD and their families and friends To heighten awareness among healthcare and other professionals concerning EDS and HSD. To support research to improve understanding of EDS and HSD and to improve healthcare for those affected services provided: Local, peer support provided by trained…
MACS (Microphthalmia, Anophthalmia & Coloboma Support)
Aims: To provide information and support to people born with Anophthalmia, Microphthalmia and Coloboma and their families. Services provided: Emotional and practical support and information Linking members with other MACS people via social media and regional activities and events Financial assistance to MACS members who require equipment or services to help meet their needs Activities…
Scottish Huntington’s Association
Aims: To offer information and support to families with Huntington’s disease, their friends and professionals. Services provided: Emotional and practical support for people whose lives are affected by Huntington’s disease Someone to talk to confidentially Liaison with other professionals to help individuals obtain services to which they may be entitled e.g. Benefits Agency and Social…
Marie Curie
Aims: Provide nursing care for people with all forms of Terminal Illness. Services provided: Offer a unique service, with over 5,000 Marie Curie Nurses across the U.K. giving practical nursing care at home to people with cancer, without charge Provides specialised medical nursing and day care in nine Marie Curie Hospices Provides education and training…
Techno-Vision Systems Ltd
DESCRIPTION OF SERVICES: Techno-Vision Braille Services provide products and services for blind and visually impaired people. Products in the range include keyboard enhancements, Braille software and Braille paper, through to Talking Dictionaries, and Index Braille embossers. Telephone support and fast engineering repairs are available should you experience any problems with any products and training is available on…