Ehlers-Danlos Support UK

National charity for people with Ehlers-Danlos syndromes or hypermobility spectrum disorders and for professionals caring for them

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  • To provide support, advice and information for people with EDS or HSD and their families and friends
  • To heighten awareness among healthcare and other professionals concerning EDS and HSD.
  • To support research to improve understanding of EDS and HSD and to improve healthcare for those affected

services provided:

  • Local, peer support provided by trained volunteers
  • Links members with each other for mutual support and the exchange of ideas
  • A free telephone and email adviceline
  • Digital and printed information

local groups:

Regular support groups meetings via Zoom and in person.

Opening hours:

Answerphone is available at all time and calls will be returned within seven days.


32 Bradford Park
32 Bradford Park
United Kingdom

Phone: 07884931376
Helpline number: 0800 907 8518 (Freephone)

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