Ehlers-Danlos Support Group

National support group for people with EDS and for professionals caring for them

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  • To provide support and information for people with EDS and their families
  • To help, encourage and inform those with EDS, as well as family members, medical and caring professionals
  • To heighten awareness and support research among medical professionals concerning EDS.

services provided:

  • Holds a conference every two years
  • Provides key-facts medical cards about EDS
  • Links members with each other for mutual support and the exchange of ideas
  • Maintains a list of specialists who have a particular interest in and experience of EDS.

local groups:

There are no local groups, but area contacts are available in most areas.

Opening hours:

Answerphone is available at all time and calls will be returned within seven days.


PO Box 748

Phone: 0208 736 5604
Helpline number: 0800 907 8518 (Freephone)

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