Aims: To offer support to families affected by Ectodermal Dysplasia To raise awareness of Ectodermal Dysplasia among professional workers, particularly those dealing with newborn babies and other interested individuals To link families in similar situations and areas. services provided: Self-help group providing mutual support and practical advice for adults and parents. Also carries out research.…
March
CALL Scotland
To provide services and carry out research and development projects across Scotland working with all those involved in meeting the needs of people who require augmentative and alternative communication (AAC) and / or specialised technology use, particularly in education. Services provided: An assessment and support service for a small number of children with complex communication,…
Child Growth Foundation
Aims: The Child Growth Foundation was set up to ensure a child’s growth is regularly monitored. It is an umbrella organisation for the following support groups. Growth Hormone Insufficiency / Deficiency including Multiple Pituitary Hormone Deficiency (MPHD) Russell Silver Syndrome including IUGR and SGA Shox Bone Dysplasia including Achondroplasia Sotos Syndrome PSM including Precocious Puberty.…
Criminal Injuries Compensation Authority
Offer financial support to the innocent victims of violent crime
Calvert Trust – Exmoor
Provider of activity holidays & courses for visitors of all abilities
CAE
Aims: The Centre for Accessible Environments (CAE) has been a leading authority on inclusive design for over 50 years. They provide consultancy, training, research and publications on building design and management to meet all user needs, including disabled and older people. Their core aim is to improve access to buildings and places by providing expert…