Aims:
- To offer support to families affected by Ectodermal Dysplasia
- To raise awareness of Ectodermal Dysplasia among professional workers, particularly those dealing with newborn babies and other interested individuals
- To link families in similar situations and areas.
services provided:
Self-help group providing mutual support and practical advice for adults and parents. Also carries out research.
additional information:
The Group has links with other Ectodermal Dysplasia organisations around the globe.
Address
Unit 1 Maida Vale Business Centre
Maida Vale Road
Leckhampton
Cheltenham
Glos
GL53 7ERR
United Kingdom
Phone: 07774465712
Website: http://www.edsociety.co.uk
Email: diana@edsociety.co.uk
