Aims:
- To offer support to other families affected by Ectodermal Dysplasia
- To raise awareness of Ectodermal Dysplasia with professional workers, particularly those dealing with newborn babies and other interested individuals
- To link families in similar situations and areas.
services provided:
Self-help group providing mutual support and practical advice for adults and parents. Also carries out research.
additional information:
The Group has links with the National Foundation for Ectodermal Dysplasia in the USA which is an international source of information.
Address
Unit 1
Maida Vale Business Centre
Leckhampton
Cheltenham
Gloucestershire
GL53 7ER
Phone: 01242 261 332
Website: http://www.edsociety.co.uk
Email: diana@edsociety.co.uk