- To offer support to other families affected by Ectodermal Dysplasia
- To raise awareness of Ectodermal Dysplasia with professional workers, particularly those dealing with newborn babies and other interested individuals
- To link families in similar situations and areas.
Self-help group providing mutual support and practical advice for adults and parents. Also carries out research.
The Group has links with the National Foundation for Ectodermal Dysplasia in the USA which is an international source of information.
Maida Vale Business Centre