Ectodermal Dysplasia Society

Support and advice on the genetic condition of ectodermal dysplasia

Aims:

  • To offer support to other families affected by Ectodermal Dysplasia
  • To raise awareness of Ectodermal Dysplasia with professional workers, particularly those dealing with newborn babies and other interested individuals
  • To link families in similar situations and areas.

services provided:

Self-help group providing mutual support and practical advice for adults and parents. Also carries out research.

additional information:

The Group has links with the National Foundation for Ectodermal Dysplasia in the USA which is an international source of information.

Address

Unit 1
Maida Vale Business Centre
Leckhampton
Cheltenham
Gloucestershire
GL53 7ER

Phone: 01242 261 332
Website: http://www.edsociety.co.uk
Email: diana@edsociety.co.uk

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