UK

National Creutzfeldt-Jakob Disease Research and Surveillance Unit.

Aims: To monitor Creutzfeldt-Jakob Disease in order to identify any change in the pattern of the disease that might be attributable to the emergence of Bovine Spongiform Encephaloapthy To identify all cases of any form of CJD and to study the clinical features of these illnesses. Services provided: Research projects Help and advice Providing practical…

Patients Association

Aims: To ensure that everybody can access and benefit from the health and care they need to live well, by ensuring that services are designed and delivered through equal partnership with patients. Services provided: Runs a helpline providing information, support and signposting Free membership for patients Represents the interests of patients to the government, the…

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