Gorlin Syndrome Group

Support group for people with Gorlin syndrome.

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Aims:

  • To offer support to individuals and their immediate families who have Gorlin syndrome or Nevoid Basal Cell Carcinoma syndrome
  • To increase awareness and educate individuals, professionals and the public at large about Gorlin syndrome.

services provided:

  • Information, advice and support is offered through the telephone helpline
  • Puts people in contact with other affected individuals and medical professionals
  • Meetings are held periodically
  • Gives information on how to cope, treatments available and new medical advances in research and treatment.

opening hours:

Helpline is available from 9.00am – 9.00pm.

Address

11 Blackberry Way
Penwortham
Preston
Lancashire
PR1 9LQ

Phone: (44) 1772 496 849
Website: http://www.gorlingroup.org/
Email: info@gorlingroup.org

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