UK

Stiff Person Syndrome

Aims: The relief of sickness and the protection and preservation of the health of persons affected by Stiff Person Syndrome, together with their families and carers. On-going education and awareness-raising within the medical profession and the general public of Stiff Person Syndrome. The promotion of research into the causes, effects, treatment and management of Stiff…

Turner Syndrome Support Society UK

Aims: To improve the quality of life for all girls / women with Turner Syndrome. Services provided: Provides support for parents, women and children with Turner Syndrome Fundraises Raises public / professional awareness Runs seminars for health professionals. local groups: Contact the organisation for further details. Opening hours: Monday – Friday, 9.00am – 5.00pm.

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