What we do: Support people impacted by GBS, CIDP, and other conditions Provide Information, Advice, and Guidance Fund and undertake clinical and social research Promote awareness of these rare and life changing conditions For information and support, or to request an information pack for your local hospital or surgery, please contact us (office hours Mon-Fri…
UK
International Costello Syndrome Support Group (UK)
Support group for those affected by Costello Syndrome
MACS (Microphthalmia, Anophthalmia & Coloboma Support)
Aims: To provide information and support to people born with Anophthalmia, Microphthalmia and Coloboma and their families. Services provided: Emotional and practical support and information Linking members with other MACS people via social media and regional activities and events Financial assistance to MACS members who require equipment or services to help meet their needs Activities…
Music and the Deaf
Helps hearing impaired people explore the world of music
National Reye’s Syndrome Foundation of the UK
Provide funds for research into the cause, treatment, cure and prevention of Reye’s syndrome an Reye-like illnesses
Perthes Association
Support for people with Perthes disease and their families