West Lothian

Patients Association

Aims: To ensure that everybody can access and benefit from the health and care they need to live well, by ensuring that services are designed and delivered through equal partnership with patients. Services provided: Runs a helpline providing information, support and signposting Free membership for patients Represents the interests of patients to the government, the…

Scottish Huntington’s Association

Aims: To offer information and support to families with Huntington’s disease, their friends and professionals. Services provided: Emotional and practical support for people whose lives are affected by Huntington’s disease Someone to talk to confidentially Liaison with other professionals to help individuals obtain services to which they may be entitled e.g. Benefits Agency and Social…

Childhood Eye Cancer Trust

Aims: To provide support and information to families affected by retinoblastoma, at the point of diagnosis, during treatment and later in life as required To raise awareness of childhood eye cancer with health professionals and the public To promote and fund retinoblastoma related research. services provided: Provides support for anyone affected by retinoblastoma Runs events…

MACS (Microphthalmia, Anophthalmia & Coloboma Support)

Aims: To provide information and support to people born with Anophthalmia, Microphthalmia and Coloboma and their families. Services provided: Emotional and practical support and information Linking  members with other MACS people via social media and regional activities and events Financial assistance to MACS members who require equipment or services to help meet their needs Activities…

Marie Curie

Aims: Provide nursing care for people with all forms of Terminal Illness. Services provided: Offer a unique service, with over 5,000 Marie Curie Nurses across the U.K. giving practical nursing care at home to people with cancer, without charge Provides specialised medical nursing and day care in nine Marie Curie Hospices Provides education and training…

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