Aims: To provide support, advice and information for people with EDS or HSD and their families and friends To heighten awareness among healthcare and other professionals concerning EDS and HSD. To support research to improve understanding of EDS and HSD and to improve healthcare for those affected services provided: Local, peer support provided by trained…
Midlothian
The ME Association
Aims: The ME Association has been providing expert help since 1980. We understand the challenges of living with PVFS, ME/CFS, and Long Covid, and believe that nobody should struggle alone. We have established an excellent reputation and consistently deliver high standards of support, provide reliable and timely information, welcome medical training, effective campaigning, and prudent…
Scottish Huntington’s Association
Aims: To offer information and support to families with Huntington’s disease, their friends and professionals. Services provided: Emotional and practical support for people whose lives are affected by Huntington’s disease Someone to talk to confidentially Liaison with other professionals to help individuals obtain services to which they may be entitled e.g. Benefits Agency and Social…
Urostomy Association
Aims: To provide information and support for people with a urinary diversion, their families and carers, both before and after surgery. Services provided: Regular magazine and other literature Open Facebook page and closed Group, to provide support Website Local meetings Trained volunteers available to provide peer support, both before and after surgery Opening hours: Monday…