VHL UK/Ireland (von Hippel-Lindau Syndrome)

Support group for people with von Hippel-Lindau (VHL) syndrome

Phone our helpline on

Services provided:

A UK support group for people and their families with von Hippel-Lindau (VHL) syndrome, Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC / Reed’s syndrome) and Birt-Hogg-Dube (BHD) syndrome.

The VHL UK/Ireland is dedicated to providing:

  • support
  • information to empower you
  • ways to connect to other people dealing with this rare disease
  • opportunities to get involved and help them reach their goal
  • research to find methods of curing VHL
  • all the resources you need to help you and your doctor find the best way to take care of your health

Support is available by telephone, email or internet.




47 Tiln Lane
DN22 6SN
United Kingdom

Website: http://www.vhl-uk-ireland.org
Email: support@vhl-uk-ireland.org
Helpline number: 0808 189 0891(Freephone)

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