Unique – Understanding chromosome disorders

Support and information to anyone who has a child or adult affected by a rare chromosome disorder.

Phone us on
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To support families of children, and individuals, with rare chromosome disorders. Raise awareness to the general public about rare chromosome disorders.

Services provided:

  • Support, networking and information
  • Family linking
  • Promote awareness of rare chromosome disorders
  • Network of local contacts
  • Social networking with private groups for parents, as well as our public profile on facebook
  • Twitter
  • YouTube
  • Instagram
  • Raise funds
  • Produce literature in an effort to promote awareness
  • Promote awareness among the professional authorities
  • Help with research and co-ordinate the centralising of information.

opening hours:

Helpline can be accessed preferably between 9.00am – 5.00pm, Monday – Friday (answerphone over 24 hours).


The Stables
Station Road West

Phone: 01883 723 356
Website: http://www.rarechromo.org
Email: info@rarechromo.org
Helpline number: 01883 723 356

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