Aims:
To support families of children, and individuals, with rare chromosome disorders. Raise awareness to the general public about rare chromosome disorders.
Services provided:
- Support, networking and information
- Family linking
- Promote awareness of rare chromosome disorders
- Network of local contacts
- Social networking with private groups for parents, as well as our public profile on facebook
- YouTube
- Raise funds
- Produce literature in an effort to promote awareness
- Promote awareness among the professional authorities
- Help with research and co-ordinate the centralising of information.
opening hours:
Helpline can be accessed preferably between 9.00am – 5.00pm, Monday – Friday (answerphone over 24 hours).
Address
The Stables
Station Road West
Oxted
Surrey
RH8 9EE
Phone: 01883 723 356
Website: http://www.rarechromo.org
Email: info@rarechromo.org
Helpline number: 01883 723 356
