Aims:
- To establish and maintain a network of neurofibromatosis specialist advisors
- Runs a Helpline for patients and their families
- To provide accessible, up to date information on neurofibromatosis via their website and head office
- Raises awareness of the condition and challenge it presents
- Links families and professionals together
services provided:
- Neurofibromatosis specialist advisors, support and offer practical help and advice to those affected, as well as their families
- Give guidance in obtaining help with schooling
- Provide information via factsheets, not only to those affected, but also to doctors, consultants, teachers and professionals. The information is consistently reviewed and updated by top experts in the field
- Hold AGM / Open Day to discuss relevant subjects.
Address
1st Floor
44 Coombe Lane
London
SW20 0LA
Phone: 020 8439 1234
Website: http://www.nfauk.org
Email: info@nfauk.org
Fax: 020 8439 1200
Helpline number: 07939 046 030
