The Neuro Foundation

Support for people with Neurofibromatosis

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  • To establish and maintain a network of neurofibromatosis specialist advisors
  • Runs a Helpline for patients and their families
  • To provide accessible, up to date information on neurofibromatosis via their website and head office
  • Raises awareness of the condition and challenge it presents
  • Links families and professionals together

services provided:

  • Neurofibromatosis specialist advisors, support and offer practical help and advice to those affected, as well as their families
  • Give guidance in obtaining help with schooling
  • Provide information via factsheets, not only to those affected, but also to doctors, consultants, teachers and professionals. The information is consistently reviewed and updated by top experts in the field
  • Hold AGM / Open Day to discuss relevant subjects.



1st Floor
44 Coombe Lane
SW20 0LA

Phone: 020 8439 1234
Fax: 020 8439 1200
Helpline number: 07939 046 030

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