SWAN UK (Syndromes Without a Name)

Support and information for families of children and young adults with undiagnosed genetic conditions in the UK.

Services provided:

  • Support and information on relevant news, studies and events
  • Online platforms to link families such as private Facebook groups
  • Free family events across the UK
  • Educating professionals about undiagnosed genetic conditions and the unique challenges that families face.



SWAN UK, Genetic Alliance UK
Creative Works
7 Blackhorse Lane
37 Queen Square
E17 6DS
United Kingdom

Phone: 0300 124 0441
Website: http://www.undiagnosed.org.uk
Email: info@undiagnosed.org.uk

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