Aims:
- To offer support and advice to affected individuals and their families
- To bring about more public awareness of MPS and related diseases
- To find, by means of research, a cure for the diseases.
services provided:
-
- Out of hours support helpline 07712 653 258
- Network of befrienders and a programme of regional events
- Information and advice on health, welfare, education, adaptations and respite care
- Regional clinics, information days and conferences including ten regional MPS clinics throughout the UK and information days and conferences in Scotland and Northern Ireland
- Opportunities to fund research into effective treatments for MPS, Fabry and related diseases in the future
- The Childhood Wood, an area planted and named in memory of those children who were born with and have died from MPS. Bereaved families are invited to plant a memorial tree in the wood.
Facebook: www.facebook.com/mpssociety
Twitter: @MPSSocietyUK
Opening hours:
The helpline can be accessed from Monday – Friday, 9.00am – 5.00pm
Out of hours listening service 07712 653 258 (for members) is available Monday – Friday, 7.00am – 9.00am and 5.00pm – 10.00pm
Saturday and Sunday, 7.00am – 10.00pm.
Opening hours:
Monday – Friday, 9.00am – 5.00pm.
Address
MPS House
Repton Place
White Lion Road
Amersham
Buckinghamshire
HP7 9LP
Website: http://www.mpssociety.org.uk
Email: mps@mpssociety.org.uk
Fax: 0345 389 9902
Helpline number: 0345 389 9901
