Aims:
- To offer practical help and support to people with Rett Syndrome, their families and carers and associated professionals
- To promote greater understanding of the Rett syndrome.
services provided:
- Telephone support
- Regional days and sometimes a family weekend
- Specialist NHS led clinics
- Organise national family led support groups
- Public presentations for professionals and parents
- Fund research.
local groups:
Contact the organisation for details of local groups.
Address
Victory House
Chobham Street
Luton
LU1 3BS
Website: http://www.rettuk.org
Email: support@rettuk.org
Helpline number: 01582 798 911 (Mon-Fri:9.00 - 4.30)
