Primary Ciliary Dyskinesia Family Support Group

Support group for people with PCD and their families

Aims:

  • To provide support to patients with Primary Ciliary Dyskinesia (PCD) and parents of children known to have the condition
  • To bring PCD to the attention of the medical profession and the public.

services provided:

  • Provide an up to date information service
  • Raise money to fund research and equipment to aid diagnosis and treatment of children and adults with PCD
  • Provide support to patients with PCD and parents of children known to have the condition
  • Support is available from 9.00am – 9.00pm, seven days a week.

membership:

No subscription, but donations welcome.

Address

Website: http://www.pcdsupport.org.uk/
Email: online form

Last updated: July 1, 2020 4:32 pm


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