The Pelvic Pain Support Network is a patient led organisation with a board of trustees who are all patients or carers. As a registered charity, they are run entirely by volunteers.
Their advisory panel comprises experts from across the world, including Australia, the US and France who are clinicians, researchers and health professionals with an interest in pelvic pain.
What they do:
• Provide support, information and advocacy for those with pelvic pain, their families and carers.
• Promote and deliver education sessions about pelvic pain in the curriculum of health professionals and amongst the public.
• Encourage and support of research to increase knowledge and understanding of the impact of pelvic pain.
The website provides:
Support and information about diagnosis and treatment for those with pelvic pain, their families and carers
Patients’ experience, managing and communicating about long term pelvic pain.
Some of the conditions covered are: Adenomyosis, Adhesions, Cancer (Bowel and Ovarian), Crohn’s Disease, Cysts, Diverticulitis, Endometriosis, Deep Endometriosis, Interstitial Cystitis, Irritable Bowel Syndrome, Painful Periods (Dysmenorrhoea), Pelvic Inflammatory Disease, Pudendal Neuralgia, Ulcerative Colitis and Vulval pain.
21 Stourpaine Rd