Noonan Syndrome Association

Provides support through research, family support and raising awareness of the Syndrome


Noonan Syndrome Association (NSA) is a registered UK charity dedicated to supporting individuals and families affected by Noonan Syndrome.  NSA aims to:

  1. provide support to families and individuals, through a helpline, publications, national and local events
  2. promote and support research into advancing understanding and care of Noonan Syndrome
  3. Raise awareness and understanding of Noonan Syndrome.

Services provided:

  • National Families for Families Days to which all families are invited and at which leading medical and SEN professionals give up to date advice and information, and through which families can network together
  • Local events run by families for families, with a social aim.
  • Social media both run by the charity and by members
  • Publications including regular newsletters
  • The support and funding of medical research to advance improvements in understanding and in the care and management of those affected or at risk
  • To improve awareness of the condition and its impact on the lives of those affected.


PO Box 479

Phone: 07808 70 70 40

Back to Directory

Back to top