Aims:
To support families and individuals affected by Myotonic Dystrophy.
Services provided:
- Provides information and support to families and individuals
- Develops self-help support by putting people in touch with others
- Promotes the Alert Card service which is a means of communicating a person’s special requirements in an emergency
- Hosts regional meetings
- Holds an annual conference.
local groups:
There are several contact points situated throughout the United Kingdom, including one in Glasgow. Contact the organisation for details.
Address
19-21 Main Road
Gedling
Nottingham
NG4 3HQ
Phone: 0115 987 5869
Website: http://www.myotonicdystrophysupportgroup.org/
Email: contact@mdsguk.org
Helpline number: 0115 987 0080
