Fragile X Syndrome is the most common known cause of inherited learning disability.
aims:
- To provide information and practical guidance to support and empower individuals and families living with Fragile X Syndrome and Fragile X – associated conditions.
- To educate and inform the public and professionals about Fragile X in order to raise awareness and understanding of the syndrome and improve support for all individuals affected by Fragile X.
- To encourage research into all aspects of Fragile X through participation of our family members in Fragile X Studies and to publicise the results
- To raise funds to carry out our work
services provided:
- National Support and Information Service
- Network support for families through our online community and support groups
- Regular newsletter, with articles by families, professionals and researchers
- A range of publications and resources, including an eLearning module to educate families and professionals about the condition.
- Range of information and family days throughout the UK
- Media campaigns and an annual awareness day
- Talks and presentations
local groups:
Local support groups of family members in some areas of the country, including Glasgow.
Office – Monday – Thursday, 9.00am – 5.00pm. Telephone answering machine available out of hours.
Address
The fraigle x Society
4 Stortford Road
Great Dunmow
Essex
CM6 1DA
United Kingdom
Phone: 01371875100
Website: http://www.fragilex.org.uk/
Email: caroline@fragilex.org.uk
