Dystonia Society

Promotes the awareness of dystonia and supports people affected by dystonia

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To support people affected by the neurological movement disorder known as dystonia, through the promotion of awareness, research and support and information.

Services provided:

  • Provides information to help people cope with dystonia
  • Counselling service for those with dystonia and their carers
  • Support and information in getting a diagnosis
  • Secondary research projects
  • Young people’s support group
  • Fundraising events.

local groups:

There are local branches throughout the United Kingdom. Check website for local groups.

Opening hours:

Monday – Friday, 10.00am – 4.00 pm (general enquiries)


89 Albert Embankment

Phone: 020 7793 3651
Website: http://www.dystonia.org.uk
Email: info@dystonia.org.uk
Helpline number: 020 7793 3650

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