Dravet Syndrome UK

Support for children and adults living with Dravet Syndrome

Phone our helpline on

We are the only registered charity in the UK dedicated to improving the lives of families affected by Dravet Syndrome.

Our mission is to bring hope to families through support, education and medical research.

We support families in many different ways, including providing practical and emotional support and advice. We also offer financial grants, such as our Seizure Monitor Fund and 16+ Assistance Fund for young people and adults. We bring families together, whether online through our community forum, or at our Annual Family Weekend Away, to help overcome the isolation of living with a rare and complex condition.

We take a leading role in raising awareness about Dravet Syndrome and educating professionals, with the aim of improving diagnosis and care for everyone affected by the condition. The generosity of our fundraisers and donors enables us to fund medical research, for better understanding of the impact Dravet Syndrome has on family life, and to improve how we diagnose, treat and manage the condition.

All our activities are underpinned by guidance and support from a world-renowned Medical Advisory Board.


PO Box 756
S43 9EB
United Kingdom

Website: http://www.dravet.org.uk
Email: info@dravet.org.uk
Helpline number: 01246 912 421

Back to Directory

Back to top