DebRA UK

Support for people with Epidermolysis Bollosa

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Aims:

To enhance the quality of life of people affected by Epidermolysis Bullosa.

Services provided:

  • Provides continuing services and support to people who are affected by Epidermolysis Bullosa
  • Funds research into the condition
  • Promote the best current practice in treatment
  • Awareness raising of the condition
  • Funds four Adult Nurse Specialists and three Paediatric Nurse Specialists all based at Great Ormond Street Hospital for Sick Children (GOSH) who can visit families throughout the UK and a Paediatric Nurse Specialist based in Scotland (See separate entry).
  • Provides specialist clinics throughout Dermatology Centres in the United Kingdom.

opening hours:

Monday – Friday, 9.00am – 5.00pm.

Address

13 Wellington Business Park
Dukes Ride
Crowthorne
Berkshire
RG45 6LS

Phone: 01344 771 961
Website: http://www.debra.org.uk
Email: debra@debra.org.uk
Fax: 01344 762 661

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