Creutzfeldt-Jakob Disease Support Network

Support and services to individuals and families affected by CJD

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To provide emotional support and practical help to families and professionals affected by all forms of Creutzfeldt-Jakob Disease and for those at higher risk of CJD.

Services provided:

  • Provides a national helpline, giving information and advice on all forms of Creutzfeldt-Jakob Disease
  • Provides emotional support for carers and links families with similar experiences of Creutzfeldt-Jakob Disease
  • Can give financial support to families in need through CJD
  • Promotes good quality care for people with all forms of Creutzfeldt-Jakob Disease
  • Provides training, workshops and conferences for professionals involved with Creutzfeldt-Jakob Disease
  • Works closely with NCJ national care co-ordinators in Edinburgh
  • Promotes research into all forms of Creutzfeldt-Jakob Disease.

Additional information:

Details for the National CJD Research & Surveillance Unit
Bryan Matthews Building
Western General Hospital
Crewe Road
Edinburgh EH4 2XU
0131 537 1980 telephone number for general enquiries and for Care Team enquiries/patient families


PO Box 346
Market Drayton

Phone: 01630 673 993
Helpline number: 08000 853 527

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