Cohen Syndrome Support Group

Support group for families of children with Cohen Syndrome


To provide information and supportive help to families of children with Cohen syndrome.

Services provided:

  • Contact via email
  • Provide information on Cohen syndrome
  • Family to family links and support.

A support group outside of the UK exists for Cohen syndrome, please ring Contact a Family helpline for details. Contact a Family’s web-based linking service can be accessed at

Telephone Contact a Family on 0808 808 3555 or  email




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