Butterly Trust

Support people with Cystic Fibrosis and their families


To provide support in the community for people affected by Cystic Fibrosis.

Services provided:

  • Information and advice on services and other resources and guidance on how to acquire them
  • Practical help that includes assistance with official forms and helping someone to negotiate their way through a complex process
  • Advocacy and representation in relation to housing, education, employment and at Disability Appeals Tribunals
  • Financial assistance for essential items e.g. computers, specialist medical items not covered by NHS or respite breaks
  • Transport to hospital appointments
  • Befriending and mentoring for young people with Cystic Fibrosis
  • Massage therapy for adults with Cystic Fibrosis while in hospital
  • Join them on Facebook www.facebook.com/butterflytrust

opening hours:

Office hours: Monday – Friday, 9.00am – 5.00pm
Outreach work is flexible and can be carried out over seven days.


Swanston Steading
109/3 Swanston Road
EH10 7DS
United Kingdom

Phone: 07775689676
Website: http://www.butterflytrust.org.uk
Email: info@butterflytrust.org.uk

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