Aims:
- Provide information and practical support to enable people with ataxia-telangiectasia and their families to live their lives to the full
- Provide information and access to specialist advice for professionals
- Achieve better, more coordinated health and social care services for people living with A-T
- Promote and fund high quality A-T research
- Speak out to ensure that the voices of people affected by A-T are heard
services provided:
- Full-time family support worker providing information, support and advocacy
- Two specialist clinics for people with A -T
- Family meetings held on a yearly basis
- Activity weekends and breaks
- Financial grants to individuals for equipment etc
- Counselling service.
opening hours:
Monday – Friday, 8.30am – 5.00pm
Publications:
Leaflets are available on request and families are kept informed through a regular newsletter.
Address
Rothamsted Research
West Common
Harpenden
Hertfordshire
AL5 2JQ
Website: http://www.atsociety.org.uk
Email: info@atsociety.org.uk
Fax: 01582 760 162
Helpline number: 01582 760 733