Association for Glycogen Storage Disease (UK)

Supports and helps people with glycogen storage disease & their families

Phone us on
Phone our helpline on


  • To act as a family contact and support group for all persons affected by GSD
  • To encourage the provision of specialist centres for the diagnosis, monitoring and treatment of GSD affected persons, both children and adults
  • To act as a focus for scientific, educational and charitable activities concerning GSD
  • To encourage the formation and interaction of GSD families and professionals around the world.

services provided:

  • Provide personal information by letter or telephone
  • Contact with other UK families experiencing similar problems
  • Publish Newsletter three times a year
  • AGM / Parents Conference once a year
  • Individual and group information exchange on the GSDNET
  • Workshops posted on the website.

Opening hours:

9.00am – 9.00pm.


PO Box 699
Sheardley Lane
SO50 0QT
United Kingdom

Phone: 03001232790
Helpline number: 0300 123 2799 Out of hours

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