Androgen Insensitivity Syndrome Support Group (AISSG)

Provides information/support to individual/families affected by AIS and similar conditions


  • To reduce the stigma, secrecy and taboo that has existed around AIS and other intersex states, by encouraging doctors, parents and society to be more open
  • To encourage the provision of psychological support within the medical system, for young people with AIS and their parents
  • To put parents and people with AIS in touch with others and to encourage them to seek support and information
  • To increase the availability of information on AIS, both verbal (from the health professionals) and written (from the support group and other sources)
  • To encourage improvements in the treatment for vaginal hypoplasia and research into why the degree of vaginal development can vary in AIS
  • To encourage retrospective studies on genital surgery, so as to evaluate whether it is an effective treatment for the patient.

services provided:

  • Provide information/support to individuals/families affected byAISand similar conditions; XY gonadal dysgenesis (Swyer’s syndrome), 5 alpha-reductase deficiency, leydig cell hypoplasia, MRKH syndrome etc.
  • Informal group meetings with guest speakers.



Back to Directory

Back to top