Advocacy for Neuroacanthocytosis Patients

Raise awareness of Neuroacanthocytosis internationally

Aims:

To support patients and families and to promote clinical and basic research into Chorea Acanthocytosis and McLeod Syndrome, Services provided:

  • Online patients Centre, providing information on diagnosis, help with daily life, how to sup
  • port one another, how to help fundraise for research
  • Library
  • Newsletter
  • Diagnostic testing
  • International Registry on NA diseases
  • Research grants

 

.

Address

39 Coleherne Court
The Little Boltons
London
SW5 0DN
United Kingdom

Phone: 0207 4608874
Website: http://www.naadvocacy.org
Email: ginger@naadvocacy.org

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