Aims:
To support patients and families and to promote clinical and basic research into Chorea Acanthocytosis and McLeod Syndrome, Services provided:
- Online patients Centre, providing information on diagnosis, help with daily life, how to sup
- port one another, how to help fundraise for research
- Library
- Newsletter
- Diagnostic testing
- International Registry on NA diseases
- Research grants
.
Address
39 Coleherne Court
The Little Boltons
London
SW5 0DN
United Kingdom
Phone: 0207 4608874
Website: http://www.naadvocacy.org
Email: ginger@naadvocacy.org