Advocacy for Neuroacanthocytosis Patients

Raise awareness of Neuroacanthocytosis internationally

Aims:

To support patients and families and to promote clinical and basic research into Chorea Acanthocytosis, McLeod Syndrome, Huntington’s Disease Like-2 and Pantothenate Kinase- Associated Neurodeneration.

Services provided:

  • Online patients Centre, providing information on rediagnosis, help with daily life, how to suport one another, how to help fundraise for research
  • Library
  • Newsletter
  • Diagnostic testing
  • International Registry on NA diseases
  • Research grants

 

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Address

39 Coleherne Court
The Little Boltons
London

Phone: 0207 4608874
Website: http://www.naadvocacy.org
Email: ginger@naadvocacy.org

Last updated: July 1, 2020 4:35 pm


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