Action for M.E.

Empowering people with M.E. to fulfil their potential and secure the care and support they need.

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To improve the lives of people with Myalgic Encephalomyelitis (M.E.), while working towards a greater understanding of the illness and ultimately a cure. Action for M.E. is the only charity in the UK supporting people with M.E. of all ages, providing support and information.

Action for M.E.’s 2022-2027 strategy, ‘Shaping our Future Together’, has been developed in partnership with children, young people and adults with M.E., their loved ones and carers, and others who share Action for M.E.’s ambitions and values. Their strategy sets out four outcomes to help end the decades of ignorance, injustice and neglect faced by people with M.E.

  • The lives of people with M.E. are improved by effective access to the information, support and advocacy they need.
  • The health of people with M.E. is improved via access to Action for M.E.’s holistic Healthcare Services, and the National Institute for Health and Care Excellence (NICE) guideline for M.E. is being effectively implemented across NHS services.
  • Increased funded via high-quality research by more researchers leads to effective treatments for M.E.
  • The UK Government establishes and leads a national strategy for M.E.

Services provided:

  • Provides people with Myalgic Encephalomyelitis (M.E.), Post Viral Fatigue Syndrome and Chronic Fatigue Syndrome with information on M.E., the symptoms of M.E and management of the illness
  • Provides a variety of free resources for people with M.E., children and young people with M.E., their families, carers and healthcare professionals.
  • Provides free Information and Support service for anyone of any age living with M.E., or caring for someone with the illness, including professionals.
  • Provides free independent advocacy for adults with M.E.
  • Provides dedicated support for families and a variety of services for Children and Young People with M.E. 
  • Provides Healthcare Services for people with M.E., including GP, Physiotherapy, Counselling and Chaplaincy
  • Provides a free helpline, ‘Listen to M.E.’, which is to help adults affected by M.E. feel less isolated by offering a listening ear.
  • Fund research into M.E., including DecodeME, the world’s largest genetic M.E. study
  • Worked with the M.E. community to identify the Top 10+ research priorities through the M.E./CFS Priority Setting Partnership (PSP).
  • Campaigns to the Government and the medical profession for better understanding and treatment, including the recently updated NICE guideline for M.E.

Opening hours:

Monday – Friday 10.00am – 4.00pm

Information and Support service (0117 927 9551): Monday to Friday 10.30am to 3pm.

Listen to M.E. helpline: Mondays 11am to 1pm, Thursdays 1pm to 3pm.


42 Temple Street
BS31 1EH
United Kingdom

Phone: 0117 927 9551
Fax: 0117 986 1152
Helpline number: 0117 927 9551

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