CDH UK

AIMS:

• To support families and their babies and children as effectively as they can
• To offer information, advice and news on all aspects of CDH
• To raise awareness of CDH and to educate the general public and medical profession
• To contribute where possible, and further study and research into better management and treatment of CDH and to assist in finding the cause and prevention of CDH.

services provided:

• CDH UK consists of families, friends and medical professionals affected by Congenital Diaphragmatic Hernia (CDH)
• Their website aims to provide support, information and advice on CDH by sharing experiences, providing news and information, raising awareness and working together with families and medical professionals to improve treatments and to further research
• CDH UK carry out fundraising events to raise funds to enable them to continue to improve their sources of information and to contribute to study and research programmes with the aim of finding better treatments and management of CDH, and to one day assist in finding a cure and possible prevention of CDH
• They hold an annual ‘get together’ to enable parents, families and friends to meet others in similar situations and they try to arrange these at different locations each year to offer fair geographical accessibility.
• The organisation also liaise with the medical profession to keep up to date with news and information and to organise seminars and conferences when and where they can.

Address

The Denes
Lynn Road
Tilney All Saints
King's Lynn
Norfolk
PE34 4RT

Website: http://www.cdhuk.org.uk
Email: committee@cdhuk.org.uk
Helpline number: 0800 731 6991(Freephone)

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