January

Advocacy for Neuroacanthocytosis Patients

Aims: To support patients and families and to promote clinical and basic research into Chorea Acanthocytosis and McLeod Syndrome, Services provided: Online patients Centre, providing information on diagnosis, help with daily life, how to sup port one another, how to help fundraise for research Library Newsletter Diagnostic testing International Registry on NA diseases Research grants…

Advocacy North East

Aims: Independent advocacy for people living in or ordinarily resident in Aberdeenshire Description of service: Independent advocacy for vulnerable people and carers in Aberdeenshire aged 16 and over to support them in their dealings with health and social care services.

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