XP Support Group

Support for people with Xeroderma Pigmentosum

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Aims:

  • To relieve the needs of persons and their families with Xeroderma Pigmentosum (X.P.) and U.V.-related conditions
  • To advance the education of the public in Xeroderma Pigmentosum
  • To promote research into Xeroderma Pigmentosum.

services provided:

  • Assist families to attend night time camps in the UK and abroad
  • Organisation also hold their own night-time camp The Owl Patrol every February
  • Give grants for U.V. protective products
  • Funds travel and accommodation expenses for patients to attend  the XP Multi-disciplinary clinic in London
  • Raise public awareness by means of an educational campaign
  • Telephone; letter support and email support.

Opening hours:

Monday and Thursday 1.00pm – 4.00pm
Tuesday, 10.00am – 4.00pm
Friday, 10.00am – 1.00pm

Closed on Wednesdays.
 

Address

Instron House
Coronation Road
High Wycombe
HP12 3SY

Phone: 01494 456 192
Website: http://www.xpsupportgroup.org.uk
Email: info@xpsupportgroup.org.uk
Helpline number: or 01494 459 888

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