Telangiectasia Self Help Group

Provide people with HHT and their families with information about Telangiectasia

Aims:

To provide people with Hereditary Haemorrhagic Telangiectasia (HHT), also know as Osler-Weber-Rendu Disease and their families with information about the condition.

Services provided:

  • Put people with HHT in touch with one another
  • Keep people with HHT informed of developments in research and treatment of this condition.

membership costs:

No charge for membership, though all donations are welcome.

Opening hours:

Monday – Friday, 9.00am – 5.00pm.

Additional information:

Although this organisation serves mainly the UK, it does have some international contact.

Address

39 Sunny Croft
Downley
High Wycombe
Bucks
HP13 5UQ

Phone: 01494 528 047
Website: http://www.telangiectasia.co.uk
Email: info@telangiectasia.co.uk

Back to Directory

Back to top