T.A.R. Syndrome Support Group

Support for people with Thrombocytopenia Absent Radius Syndrome

Aims:

To support families affected by T.A.R. syndrome.

Services provided:

  • To raise awareness of T.A.R. syndrome with professionals and other interested individuals
  • To link families in similar situations and areas
  • To give new families hope for their children’s future through the shared experiences of older children in the group
  • To share information on equipment, benefits and relevant support organisations
  • To support families through increasing public awareness of T.A.R. syndrome by raising funds, organising events and publishing literature
  • Bi-annual Family Day.

Available via their Facebook page https://www.facebook.com/groups/6645978714/?fref=ts

Address

Website: http://www.ivh.se/TAR
Email: susyedwards@hotmail.co.uk

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