Spinal Muscular Atrophy Support UK

Support group for people with SMA and their families

Aims:

Spinal Muscular Atrophy Support UK inform, support and empower families and individuals affected by all forms of SMA and the professionals supporting them.  They also raise awareness of the condition and fund and support the research community addressing the causes, treatment and management of SMA.

 
services provided:

Their small experienced and qualified support services team offers free:-

  • Information, practical advice and guidance
  • Emotional support
  • Multi-sensory toy packs for babies newly diagnosed with SMA Type 1 or SMARD
  • Contact with others who have personal experience of SMA.

Support can be provided by phone or email for adults, young people, parents, relatives and friends affected by Spinal Muscular Atrophy, health care and other professionals.  They also offer home visits.

Opening hours:

Monday – Thursday, 9.00am – 3.30pm
Friday – 9.00am – 1.00pm.

Additional information:

Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. SMA may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing. SMA is often grouped into ‘Types’. Types of SMA are based on the age at which symptoms first appear and what physical ‘milestones’ a baby or child is likely to achieve. Milestones can include the ability to sit, stand, or walk. There are four main types of SMA: Types 1, 2 and 3 appear in childhood and Type 4 in adulthood. For more information on the different types of SMA please see www.smasupportuk.org.uk

Address

40 Cygnet Court
Timothy's Bridge Road
Stratford upon Avon
Warwickshire
CV37 9NW

Phone: 01789 267 520
Website: http://www.smasupportuk.org.uk
Email: office@smasupportuk.org.uk
Fax: 01789 268 371

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