To support families who are affected by Goldenhar syndrome.
- Offers advice and support and maintains a family contact list, linking families where possible
- Organise family meetings
- Family weekends with medical speakers
- Members are kept up-to-date with appropriate information.
Monday – Friday, 10.00am – 5.00pm.
If you would like to talk to someone you will need to send an email first. As soon as they receive your email they will endeavor to contact you as soon as possible.
They are just normal families running the group. They don’t have offices, staff and dedicated telephone lines so they don’t advertise their contact numbers on the internet.
43 Bemersley Road
Stoke on Trent