Goldenhar Family Support Group

Supporting families with Goldenhar syndrome

Aims:

To support families who are affected by Goldenhar syndrome.

Services provided:

  • Offers advice and support and maintains a family contact list, linking families where possible
  • Organise family meetings
  • Family weekends with medical speakers
  • Members are kept up-to-date with appropriate information.

Opening hours:

Monday – Friday, 10.00am – 5.00pm.

Additional information:

If you would like to talk to someone you will need to send an email first. As soon as they receive your email they will endeavor to contact you as soon as possible.
They are just normal families running the group. They don’t have offices, staff and dedicated telephone lines so they don’t advertise their contact numbers on the internet.

Address

43 Bemersley Road
Cornhill Norton
Stoke on Trent
Staffordshire
ST6 8JF

Website: http://www.goldenhar.org.uk/
Email: info@goldenhar.org.uk

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