To offer support, information and encouragement to those with FSH-MD, their families, carers and friends.
- Hold Get Togethers and theme days which include guest speakers, discussions group’s workshops and demonstrations, information days and social events around the UK
- Point of contact for the newly diagnosed
- Offering support and advice to members and their carers
- They are able to put fellow fsh’ers in touch with each other
- Free welcome pack.
There are several local groups located around the United Kingdom. Contact the organisation for further details.
There is no charge for membership.
Monday – Friday, 9.00am – 5.00pm.
c/o Muscular Dystrophy Campaign
61a Great Suffolk Street