CdLS (Cornelia de Lange Syndrome Foundation UK and Ireland)

Support group for families of children with Cornelia de Lange Syndrome

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Aims:

To ensure early and accurate diagnosis of Cornelia de Lange syndrome and to enable families, friends and professionals to make informed decisions.

Services provided:

  • Support service for medical professionals
  • Network of professionals interested in the syndrome
  • Network of regional co-ordinators arranging family meetings
  • Fund-raising
  • Annual international conference.

Address

The Tower
Guardian Avenue
North Stifford
Grays
Essex
RM16 5US

Phone: 01375 376 439
Website: http://www.cdls.org.uk
Email: info@cdls.org.uk
Fax: 01375 404 478

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