Birdshot Uveitis Society (BUS)

Support people with Birdshot and provide up to date information about the condition

Aims:

  • Objectives are to promote and protect the physical and mental health of sufferers of Birdshot through the provision of support, education and practical advice.
  • To advance the education of the general public in all areas relating to Birdshot.

They aim to do this by:-

  • supporting patients with Birdshot, particularly when first diagnosed
  • providing up-to-date information about the condition and treatment options to help empower patients and ensure they have access to the most appropriate treatment possible
  • holding a database of consultants and rheumatologists who have expertise and interest in Birdshot and its treatment, so that patients can make informed choices about where to go for treatment
  • building better services for people with Birdshot, including speedier diagnosis, a pathway into specialist treatment and treatment protocols that are standardized across the UK
  • raising the profile of Birdshot to ensure it receives a fair share of health and social care resources
  • helping prevent avoidable loss of sight or vision through untreated or inappropriately treated Birdshot
  • building a community of Birdshot people around the UK
  • establishing the incidence and prevalence of Birdshot. At the moment, Birdshot is classed as a ‘rare’ or ‘orphan’ disease. Because of this, it is not readily understood or recognised and some people have difficulty in finding appropriate healthcare to prevent the loss of sight.
  • promoting international links to research in other countries.
  • promoting an international consortium of research into the condition to both better understand and treat Birdshot and to use the learning to help treat or prevent other autoimmune diseases.
  • fundraising in order to achieve our objectives.

See separate entry for Uveitis group in Scotland.

Additional information:

Birdshot Chorioretinopathy (often shortened to BSCR or Birdshot) is a rare and potentially blinding chronic posterior uveitis. Uveitis means Inflammation of the uvea, the part of the eye that is made up of the iris, the choroid of the eye, and the ciliary body. The uvea provides most of the blood supply to the retina.

Address

BUS
PO Box 64996
London
SW20 2BL

Website: http://birdshot.org.uk/
Email: info@birdshot.org.uk

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