CdLS (Cornelia de Lange Syndrome Foundation UK and Ireland)
Support group for families of children with Cornelia de Lange Syndrome
To ensure early and accurate diagnosis of Cornelia de Lange syndrome and to enable families, friends and professionals to make informed decisions.
- Support service for medical professionals
- Network of professionals interested in the syndrome
- Network of regional co-ordinators arranging family meetings
- Annual international conference.
Record last updated: 13th Sep 2016