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Pelizaeus-Merzbacher Support Group

Contact group for families with children who have the condition

AIMS:

The Pelizaeus Merzbacher Disease Support Group has been set up to support families affected by the disease throughout the UK.

SERVICES PROVIDED:

  • Providing information and support about the condition to affected families
  • Produce newsletter 3 - 4 times a year.
  • The group does not supply literature to professionals.

See:  https://www.cafamily.org.uk/medical-information/conditions/p/pelizaeus-merzbacher-disease/

and

http://www.pmdfamilysupport.com/what-is-pmd.html

CONTACT DETAILS

c/o Contact a Family
United Kingdom

Tel: 0808 808 3555 (Freephone)
Minicom: 0808 808 3556 (Textphone)
Email: helpline@cafamily.org.uk

Record last updated: 27th Jul 2017

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