Information, support and advice for people with Nail-Patella Syndrome
- To provide support, advice and information to NPS affected people and their families
- To promote research into NPS and distribute any results to those affected.
- Can link similarly affected families
- Provide information and advice on NPS
- Promote understanding and friendship between parents
- Distribute newsletters every four months to allow all on mailing list to keep up with events within the organisation.
Monday - Friday, 9.00am - 5.00pm.
- Alternative names for Nail-Patella Syndrome:
- Turner-Kieser Syndrome
- Hereditary Onycho-Osteo-dysplasia (HOOD)
- Fong Disease.
Record last updated: 9th Sep 2016